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Old 02-28-2013, 01:19 PM   #12
muskrat_skull
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Join Date: Dec 2011
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Quote:
Originally Posted by ac_miss View Post
I'm very fortunate to receive a new liver. My situation was very scary. Once I found out I had Autoimmune hepatitis (AIH), i was told i needed a new liver within 24-48 hours or else I'd die. I don't remember this at all, but my husband and family were scared. After 24 hours, I did receive a new liver from an anonymous 27 year old petite woman from the Dallas area. Her unselfish decision is what saved my life. I'll forever be grateful for her.

As far as my meds, the one that affects me so much is the prednisone. I'll be glad to discontinue taking it. My tranplant coordinator says after 6 months, I will probably stop taking it. March 7 will be 6 months post transplant, but my next visit isn't until April 4. But...i shouldn't complain. I'm now healthy and live, so what's one lil pill to worry about? LOL.

Are you on FB? There's a group called Liver Transplant Patients, i believe. If you haven't already, you should join!
No, I'm not on FB. I am on that med now. my meld isn't high enough for them. I got acutely ill when I was young, and have just slowly malingered for a while, the rest of my body being attacked as you know, the disease affects all kinds of things. Now things are changing as I'm older too.

That should be a cure for you and you'll be off that pred soon. I take handfuls of stuff. I think that AIH and PBC are more prevalent in Indians, right? It seems to be in my family.
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