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Old 09-10-2012, 10:54 PM   #1
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Surgery and healing

I finally got my surgery and I am now in the process of healing. The good news is I am one step closer to getting back to a normal life. The bad news is I am in a lot of pain. I want to thank everyone who previously sent me all their well wishes. It means a lot to me. I also want to let you guys know that with recent research that has been done into Hidradenitis Suppurtiva they have discovered that even though Hs is a rare disease that a relatively large majority of sufferers have native american heritage. This is a disease that is rare and commonly miss diagnosed. If you know someone who gets more than 3 boils or abscesses a year then please encourage them to get checked out.
For more information on this disease go to http://en.wikipedia.org/wiki/Hidradenitis_suppurativa
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Old 09-11-2012, 12:10 AM   #2
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Thanks for posting that link, and I'm sending you strength for a full recovery. Is your condition now cured or can you have reoccurrence ?
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Old 09-11-2012, 12:42 AM   #3
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Glad you had your surgery. I hope you'll heal fast.
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Old 09-11-2012, 01:11 PM   #4
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Old 09-20-2012, 04:10 PM   #5
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Hs sux

Thank you for the healing energy. I can get better but I will never be cured HS never goes away it just hides and moves. I maybe able to get back to a semi normal life but with HS your life gets drastically changed and the surgeries make it better but there is no sure. I was the youngest person in Ohio to have stage 3 sores. I had no skin under my arms or from my belly button to my groin. I ended up in Nation Wide Children's Hospital for 2 weeks in February 09 with a septic infection and in a coma. I almost died because people did not know what it was or how to treat it. There are so many little ones who get signs when they are young and are scared because of where they get the sores just like me so they don't tell anyone. I was talking to a nurse who had been researching the disease and she asked me if I have Native American heritage and that is a given for me. The nurse explained to me about how even though it is a rare disease and you literally have a better chance of hitting the lottery than you do of getting it that it is 60% more likely to be some one who is Nativa american, Latin or Asian.
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<--- I'm not Short I'm fun sized.
When life gives you lemons throw them back and tell it to make its' own ******* (fill in the blank) lemon aid.

Sometimes the cup is have empty, Sometimes it is half full. I just want to know who keeps drinking my .
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